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Winter
2010
"Click
Here to watch the Share A SmileTM segment with
WFAA Channel 8's Jonathan Betz!"
Charity steps forward after report on child with deformed
skull
by JONATHAN BETZ / WFAA-TV
Posted on December 22, 2009 at 10:00 PM
Updated Wednesday, Dec 23 at 10:49 AM
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Related:
Soldier's wife battles insurance company
Share A Smile
At birth, Chesni LaRoe faced a life-altering condition that
had an easy solution.
Born with a deformed skull, the toddler needed a specialized
helmet called a DOC Band to reshape her head. However, the
$3,000 price tag was too expensive for Chesni's parents, and
her insurer refused to cover the expense.
Her father, 23-year-old Matt LaRoe, is a specialist in the
Army and is currently fighting in Afghanistan. Hes not
expected to return home until February.
Life's hard enough; why add more to it? said
Kelsi LaRoe, Chesni's mother.
Life got a little easier for the 22-year-old mother earlier
this year. After News 8 featured their fight with LaRoe's
insurance company, donations and help began to come.
Fights like what the LaRoes faced are a harsh reality for
many families. Holly Stock said she was shocked to learn in
1999 her insurer would not fix a deformity on her then three-year-old
daughters nose.
We were very surprised," she said. "They
considered it cosmetic. Clearly, it was. It wasn't affecting
anything physically with her at that point. However, she would
be a completely different child today if she had a huge vascular
malformation on the end of her nose.
The family paid for the surgeries themselves. Now 13-years-old,
her daughter - Channing - shows no scars and doesnt
have to worry about teasing from other children. The experience
motivated the Plano mother to start a foundation in 2002 called
"Share a Smile," which has helped nearly 100 children
with serious deformities from low-income families.
With the help of surgeons donating their time, the foundation
has helped correct deformities from birthmarks to hemangiomas,
tumor-like bubbles of blood on the skin.
A lot of insurances just do not cover this type of
thing, Stock said. There's a clear line between
what is cosmetic and what is not. Having a mole removed on
your face that doesnt show very much is one thing; having
a malformation or a disfigurement on a small child's face
that's only going to get worse as the child grows older and
impact them socially and physically is very important to correct.
Many insurance companies do not cover things like cranial
molding helmets or removing skin discolorations, partly because
some doctors believe they will fade over time.
The LaRoes' provider, Tricare, is a government insurance
plan for military families. The company has considered and
dismissed paying for the helmets in the past.
The underlying condition for the deformity is not caused
by craniosynostosis, which is a congenital defect, said
Bonnie Powell, director of Tricare Deputy Communications,
in a statement to News 8 in August. The misshaping of
the head alone does not qualify the beneficiary for a medical
device."
The LaRoes feared their daughter's misshaped head would eventually
cause vision and hearing problems.
After the story ran on News 8, Stock's charity bought Chesni
a helmet, which her mother said is working by slowly squeezing
her skull into shape.
I was so grateful for her, LaRoe said. Its
very expensive. Its just a great, great help she did
that.
E-mail jbetz@wfaa.com
Summer
2009
Hello everyone -
Well, our first Corks and Forks fundraising event was HUGELY
successful! Held on June 27 at our home, the event was both
fun and extremely financially rewarding. Because there was
no overhead and little expense due to the donations we received,
this event was our most financially successful event to date! With
close to 100 guests in attendance, the evening flew by quickly,
with everyone fully participating in the event activities. Thanks
to all who experienced the evening with us: tasting, visiting, donating
and enjoying yourselves!
The reps from the vineyards: Tom Craven (St. Michelle Wine Estates www.ste-michelle.com ),
Drew Pierce (Trinchero Family Wines www.tfewines.com), and David Wood (Multi-Carte) were
not only incredibly knowledgeable about the selections they represented, they were also
very entertaining! The event would not have been as successful - or fun - without their
enthusiastic participation. What a fabulous group of guys! Thank you for not only donating
the wine for the evening, but also for donating your time and energy on a Saturday night!
For a list of the delicious varietals we experienced during the evening, please visit our
"Past Events" page and click on the links.
Thank you to Compass Bank for generously underwriting our event again this year. Without
their continued support our fundraising events truly would not be nearly as financially
successful. Their ongoing financial support allows us to help so many kiddos in need!
Our amazing auction not only raised much needed funds, it also added excitement to the evening!
Thanks to ALL of our generous donors and sponsors:
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2009
Event Sponsors
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Dr. A. Jay Burns
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Dr. John Burns
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Staff at Fogelson
Plastic & Craniofacial Surgery
Center
for Infants and Children
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vintageatheart.net
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GAILEY DESIGN
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Unique one of a kind vintage gift items
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And last but definitely not least by any means
thanks to
all of our loyal, hardworking volunteers. Each of you chose
to spend your Saturday night tirelessly working for a good cause.
We have said it many times before and will continue to say it:
we have THE best volunteers any nonprofit foundation could ever
ask for! We would not be here with out you
.
.guests, donors, sponsors and volunteers: you ALL are
truly making a difference in MANY children's lives!
Please check back often for upcoming events and updated information!
Holly & Blake
April
2009
Happy
Spring to everyone!
Overdue for a quick update on Share
A Smile activities! There are several exciting
things happening at the moment.
First, we have made the difficult decision not to hold our
annual polo match fundraising event this year. Given the state
of the economy, it seems appropriate that we scale down our
fundraising event this year. In addition to the cost of holding
the event itself, we must also pay the membership fee to become
members of the polo club. These costs have always been covered
by donations from our corporate sponsors. Though we are hoping
those sponsors will come through for us again this year, we
are not able to count on those donations as we have in the
past. Additionally, attendance will most certainly be down
as guests do not have the discretionary funds they once had.
As with every nonprofit, our donations are fewer, so should
we be fortunate enough to receive donations from those corporate
sponsors, it seems appropriate to use those funds strictly
for treatment of our kiddos. Las Colinas Polo Club personnel
are being extremely understanding - several companies and
nonprofits are in the same position we are and have made the
same difficult decision. We have been assured that we will
continue our close relationship with the polo club and, when
we are able, we will pick up right where we left off.
Thank you Compass Bank for renewing your corporate
sponsorship with Share A Smile!
Compass Bank has truly stepped up for us over the years and
we are so very grateful for their unwavering and ongoing support
(Randy, you are fabulous!).
As an alternative to the polo match event, plans are underway
for our first annual wine tasting FUNdraiser! Republic
National Distributing Company (www.rndc-usa.com)
has generously arranged for 3 of their wine vendors to donate
several cases of wine, as well as have representatives from
their companies on hand to conduct the tastings. Republic
has been a long-time supporter of Share
A Smile, having donated wine and champagne
for our polo matches as well as for numerous other fundraising
events we have held. Representatives from Trinchero Family
Estates (www.tfewines.com),
Ste. Michelle Wine Estates (www.ste-michelle.com)
and wine wholesalers Schmitt-Sohne (www.schmitt-soehne.com)
and Multi-Carte (www.multicarte.com)
will be on hand to share some delicious wines as well as their
wine knowledge and expertise. Please visit our "Events"
page for more information regarding the wine varietals each
company will be presenting. Along with wine, we will provide
food pairings at each station as well as conduct a silent
auction and various other wine related activities.
The "Corks and Forks" Wine Tasting Fundraiser
will be held at our home in the evening of June 27th.
This scenario will allow us to experience the evening in a
unique and intimate setting. If you would like to receive
an invitation or know of a friend who would be interested
in attending the wine tasting fundraiser, please email us
@ blakestock100@hotmail.com
or give us a call at 972.208.8813.
"Save the Date" cards will be sent out at the beginning
of May. We hope you will plan on joining us June 27th for
wine education, wine tasting and lots of FUNdraising!
More exciting news
.we were contacted at the end
of November by a member of the Plano Rotary Club regarding
a $100,000 grant the N. Texas chapters wanted to bestow upon
a local charity. We did apply, were contacted, and were one
of 34 finalists. The winner was announced at a rotary luncheon
April 17th. Unfortunately, we were not awarded the grant,
however Blake & I attended the luncheon at the request
of our rotary sponsor, Octavio Ortiz, in order to meet
other members of the club. His goal (as is ours) is that we
will be able to form a partnership with the club in which
we will benefit from their fundraising efforts throughout
the coming years. It was wonderful to visit with Octavio and
we are extremely appreciative of all the hard work he put
forth on our behalf - thanks Octavio!
Obviously, winning the $100,000 grant would have been an unbelievable
blessing but we are grateful for the opportunities certain
to present themselves simply by continuing a relationship
with the Rotary Club. We are hopeful we will have much positive
news to report in this area in the future!
The other fun "happening" has to do with a high
school Senior from Ohio. Abby contacted me several
months ago asking if she could write her Senior thesis on
Share A Smile
Foundation as well as conduct a fundraising event to benefit
SASF. I have been in contact with her and her advisor, sent
her SASF info & pictures for her "Hoop-a-Thon"
held April 11th. Again, we are very excited that, in addition
to raising over $1000, we were introduced to an entirely new
population through the efforts of this ambitious & hard
working young girl! GREAT job Abby! Check back soon for pictures
from Abby's Hoop-a-Thon.
One final fundraiser we are attempting to put together is
in partnership with Starbuck's. If you'll remember, we have
held several fundraisers at our local Starbuck's store, each
netting us $1000 donation from Starbucks Corporation
in addition to the funds we raised at the event. One such
fundraiser was the "Share A Cup with a Soldier"
in which over 1000 pounds of coffee and letters from school
children were sent to Army Sgt. Frank Sarratt's unit
in Iraq. Frank, back in Iraq for his 3rd tour, is commanding
a group of very brave (very) young men. Frank's wife recently
contacted me expressing her gratitude for those letters &
asked if we may be able to conduct a similar fundraiser for
Frank's new unit. We are hoping to hold this event at the
beginning of summer. We'll keep you posted!
On a sad note, we need your prayers for Alex, Austin's
dad and one of our greatest supporters. After surviving 2
previous battles with sarcoma of the heart, Alex announced
a couple of months ago that he had learned the cancer has
returned. The cancer has fused itself to the septum (main
wall that separates the left and right chambers of the heart)
making it inoperable.
Some of you have only met Alex briefly & some of you know
him a little better. We know him as the loving dad of Austin,
one of our first Share A Smile
patients. He and his beautiful wife Danielle also have
a little girl, Alexis. Alex and his family have attended
several of our polo match fundraisers over the years and are
an amazing, loving family. For our 2008 fundraiser, Alex worked
hard to secure a donation for use in our silent auction. He
was able to present us with a gorgeous platinum and diamond
pave bracelet from his employer, David Yurman, which
brought in a very large donation (and which our volunteer
coordinator, Allison, proudly wears!).
If you were at our 5th Annual Share
A Smile Foundation Polo Match fundraiser
you will also remember the very touching speech Alex made
to all in attendance about the impact Share
A Smile has made in the family's life. Below
are a couple of pictures of Alex & Austin. The first is
Austin enjoying the stick horse races and the other is Alex
addressing the crowd while holding Austin in his arms.
.JPG)
Our local FOX News station did a report on Alex and his family
that aired this week. If you missed the story when it aired
and would like to experience it, you can do so by visiting
www.myfoxdfw.com
and searching for "Alex Laynor"; his story
is titled "Alex Laynor Fights Unique Cancer Battle".
Please keep Alex, Danielle, Austin & Alexis, as well as
all of their friends and family, in your thoughts and prayers
during this incredibly difficult time. Alex & Danielle
are strong and courageous - and can use all of the prayers
and good wishes we can send their way.
Thank you all for your continued support of the Share
A Smile Foundation. Should you have any questions
or suggestions, please don't hesitate to contact either of
us!
Sincerely,
Holly & Blake
blakestock100@hotmail.com
May
2008
What an
incredibly busy & rewarding year this has been! Though
extremely disappointed that we were not able to hold our polo
fundraising event in 2007 due to the torrential rains, we
managed to raise funds through our online auction as well
as through generous donations from individuals who recognized
our plight. We are continually amazed at the generosity each
of you exhibits and recognize that Share
A Smile FoundationTM ®
would not be successful in changing children's lives if it
weren't for each & every one of you.
As I said,
2007 was a very eventful year! Here are just a few of the
highlights:
- We are
very please to announce that Dr. John Burns graciously
agreed to join our Board of Directors - welcome aboard Dr.
Burns!
- In addition to Dr. Jay Burns and Dr. John Burns,
Dr. Steve Byrd, Dr. Richard Ha and Dr. Craig
Hobar have all donated their surgical expertise to children
sponsored by the Share
A Smile FoundationTM ®.
Thank you all!
- We were able to assist 2 kiddos from out of the area that
need treatment for their vascular malformations: Axel,
who was from the Philippines, and Logan, whose family
is from Texas but currently resides in Guatemala as his parents
are missionaries there. Unfortunately, though we were able
to assist Axel in his journey to be evaluated by Dr.
Jay Burns, he was unable to be treated here and was referred
to a specialist in sclerotherapy. As for Logan, we
are currently sponsoring him for treatment of a very widespread
& severe port-wine stain (his family travels here from
Guatemala every couple of months for his scheduled treatment).
You can view pictures of Logan (and his beautiful smiling
face!) with his mom, as well as read the very gracious than
you note she wrote, on our "Testimonials" page.
Also
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- The Children's Miracle Network referred a family
from South Dakota to us. Luke, the family's baby boy,
was in severe need of a STAR Band/helmet. His parents paid
for most of the cost in order to get their son the help he
required, however, as with all of our parents, though they
work very hard, the family was struggling to pay the balance
they owed (dad is a farmer, mom works part-time and they have
young daughter as well). They were exceptionally grateful
& we are proud to have been able to help Luke &
his family. We are excited that families, not only in Texas
but in other areas of the world as well, are learning about
Share
A Smile FoundationTM ®!
- Last fall, we were able to sponsor our first child in need
of cleft palate surgery. Little Brianna had her first
surgery in September and is due for her second (and hopefully
final) surgery this summer. Her parents are very young and
though dad is employed, the family does not have health insurance.
- We entered into a contract with Orthomerica Products,
Inc. and STAR Cranial Center of Excellence allowing
us to: 1) provide STAR Band helmets to 10 children per year
at a deeply discounted rate
2) provide head scans (at cost) for over 200 children per
year whose parents cannot afford to pay for them.
- Blake & I were able to visit the Orthomerica
plant in Orlando this year. We were treated to a very interesting
& extremely informative tour, which left us in awe of
the company's capability to provide services to both children
& adults. We hope to continue our relationship with them
for many years to come.
- Most importantly, in the 5 ½ years since Share
A Smile FoundationTM ®
was founded, we have been able to change the lives of almost
100 children!!
As for
other important Share
A Smile FoundationTM ®
news, we are very, very busy planning for our 5th Annual
Share
A Smile FoundationTM ®
Polo Match! Please join us Saturday, June 14 along
with our very special guest MC, WFAA Channel 8's news reporter,
Steve Stoler and his family! Steve graciously agreed
to lend his professional talents to our event this year and
we couldn't be happier! In addition to the exciting polo match,
there will be a delicious seafood feast provided by Two
Rows Catering, ice cold refreshments, our fabulous silent
auction, ½ time champagne divot stomp and numerous
games and activities (including a bounce house!) for kiddos
of all ages. We have a special treat planned for our live
entertainment this year: "Shield's Steel",
a steel drum ensemble comprised entirely of exceptionally
talented students from Donald T. Shields Elementary School
in Red Oak, has enthusiastically offered to provide us with
some beautiful Caribbean steel drum music before & after
the match! Please plan on arriving early (gates open at 5pm,
the polo match begins at 6pm) or staying a bit afterwards
(the match will end at approximately 8pm) to enjoy the music!
This is a great way to celebrate Father's Day and support
a worthwhile cause at the same time!
5th
Annual Share
A Smile FoundationTM ®
Polo Match
Saturday, June 14th
"Our Dad's - The Perfect Catch!"
Rain Date: Saturday, June 28th
Gates
open at 5pm
(preview auction items, enjoy live music, hear the rules of
polo)
Match
begins at 6pm
Seafood
feast served 5-7pm
(Adults: delicious fish tacos, black beans, cole slaw &
all the fixin's; Children under 12: fish sticks and french
fries)
Half-time
champagne divot stomp 6:45-7pm
Live music after the match (approximately 7:45 - 9pm)
Tasty
and unique alcoholic beverages will be available for you to
experience throughout the evening
(Tony from Leblon will be on hand to create his VERY yummy
caipirinhas!)
Non-alcoholic beverages (ice cold water and sodas) will also
be available for purchase
Cost is:
Adults: $35 w/seafood feast & $25 w/out seafood feast
Children under 12: $15 w/seafood feast & $10 w/o seafood
feast
For more
information or to purchase tickets, please give us call at
972.208.8813 or send us an email at blakestock100@hotmail.com
with your address and we'll be happy to send you an invitation!
That's
it for now
..check our "Upcoming Events" page
for a list of a few of the exciting auction items we will
feature at the polo match!
Holly
July 14, 2007
We are proud to announce that our 1st Ever Share
A Smile FoundationTM ®
Online Auction was a huge success! The rain didn't hamper
THIS fundraising effort: we raised over $3000 - and had fun
doing it! A BIG thanks to all who participated - we hope you
enjoy your prizes! Below is a list of the lucky (and very
generous!) owners/winners.
Proud
Owners/Winners and their FABULOUS Prizes!
Susan Blue: New Balance Men's Work Out & $100 G.C.
Tommy & Dianne Newman: Master's Memorabilia &
Round of Golf at Oakmont Country Club
MaryLee Bergwall: Day & Night at the Shops at Legacy
in Plano
Belinda Orland: Stephan Pyles (Lunch for 4)
Blake Stock: Coordinating Men's & Women's ADIDAS
Alan Hardin:Texas Sports Package
Doris Van Horn: Romantic Dinners Saturdays for a month
Carol Rennesund: Tiffany Cushion Necklace
Allison Santa Maria: Pink Turquoise & Silver Necklace
Edmund Dabrowski: James Avery Silver Fisher's of Men
Bracelet
Alan Hardin: Romantic Getaway at Hotel Crescent Court
Blake Stock: 5 Course Gourmet Dinner for 8 Prepared
by Chef Mark McDaniel
Tommy & Dianne Newman: SW Air TIX and 3 nights
at Hilton Torrey Pines
Becky Cook: Handpainted Women's Sandals
Keely Joseph: Black Leather Fossil Hobo
Becky Cook: Brown Leather Fossil Hobo
Edmund Dabrowski: Silhouette Women's Amber/Brown Sunglasses
Alan Hardin: Silhouette Women's Black/Grey Sunglasses
Alan Hardin: Silhouette Men's Brown/Grey Sunglasses
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July
13, 2007 Online Private Bidding Auction Items
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Men's
New Balance Work-out Apparel (5-pce/SZE Large)
$100 Gift Certificate to any New Balance Store
www.newbalance.com
Value: $250
Minimum Starting Bid: $75

2007 Master's Memorabilia
Round of Golf for 4 at Oakmont Country Club in Corinth
www.oakmontclub.com
Value: $300
Minimum Starting Bid: $50
Shops At Legacy in Plano:
Solitaires Diamond Shop ($50)
Blinc ($25)
Angelika Movie Theatre (2 Tickets)
Friday or Saturday Night Stay at Marriott Legacy Town
Center
www.marriott.com
Value: $240
Minimum Starting Bid: $75
Stephan Pyles Restaurant
Lunch for 4
www.stephanpyles.com
Value: $100
Minimum Starting Bid: $25

Coordinating HIS (2-pce/SZE Large) & HERS (3-pce/SZE
Med) ADIDAS Work-out Apparel
www.adidas.com
Value: $240
Minimum Starting Bid: $75

Lauren's Design's
Beautifully Handcrafted Unique Sterling Silver &
Pink Turquoise Necklace
Value: $200
Minimum Starting Bid: $50

James Avery
Silver Fisher's of Men Ichthus Bracelet
www.jamesavery.com
Value: $180
Minimum Starting Bid: $50
Romantic
Getaway
One Night Stay at the Luxurious Hotel Crescent Court
in Dallas
Including Breakfast
www.crescentcourt.com
Value: $625
Minimum Starting Bid: $200
Fabulous Gourmet 5 Course Dinner for 8 Prepared and
Served in Your Home by Renowned
Chef Mark McDaniel of ReMARKable Affairs
www.remarkableaffairs.com
Value: Priceless
Minimum Starting Bid: $200

Exclusive Daniel Swarovski Crystal Women's Eyewear
Melange Model S572 in Olivine
Zero Occlusion Swarovski Crystals and 23 Carat Gold
www.daniel-swarovski.com
Value: $650
Minimum Starting Bid: $300
Escape
the Texas Heat (or rain!)
SW Airlines (2 Tickets to any SW Destination)
www.southwest.com
3 Nights at Hilton La Jolla Resort at Torrey Pines
www.hilton.com
(Tickets & Hotel May be Used Separately)
Value: over $1400
Minimum Starting Bid: $500
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Romantic Dinner Every Saturday for a
Month!
Maguire's Regional Cuisine
www.maguiresdallas.com
Maggiano's
www.maggianos.com
Mi Cocina
www.mcrowd.com
Ruggeri's
www.ruggerisrestaurant.net
Value: $235
Minimum Starting Bid: $50
Beautiful Tiffany & Co.
Silver Cushion Necklace
www.tiffany.com
Value: $175
Minimum Starting Bid: $50
Texas Sports Package
Dallas Stars Eric Lindros Postcard & Autographed
Puck
www.dallasstars.com
Dallas Mavericks Devin Harris Autographed 8x10 Photo
www.nba.com/mavericks
Texas Rangers Baseball Club (4 Tickets to any game)
www.texas.rangers.mlb.com
Cowboys Golf Club ($50 off round of golf for 4)
www.cowboysgolfclub.com
FC Dallas Soccer (4 Tickets to any game)
www.fc.dallas.mlsnet.com
Value: $475
Minimum Starting Bid: $100
Annette's
Touch of Class
Handpainted Women's Sandals SIZE 7
www.annettestouchofclass.com
Value: $80
Minimum Starting Bid: $25

Black Fossil Brand Leather Hobo
www.fossil.com
Value: $150
Minimum Starting Bid: $30

Brown Fossil Brand Leather Hobo
www.fossil.com
Value: $150
Minimum Starting Bid: $30

Silhouette Brand Sunglasses (Bid separately)

1 Pair Women's Black/Grey

1 Pair Women's Amber/Brown

1 Pair Men's Brown/Grey
www.silhouette.com
Value: $300 each
Minimum Starting Bid: $50 each
Exquisite 8x10 Imperial Portrait Session
From Gittings Studios
Includes Gittings Design Consultation,
Family Portrait Session (on Location or in Studio) and
an 8x10 Imperial Portrait
www.gittings.com
Value: $640
Minimum Starting Bid: $300
Assumptions: Retail values listed
for auction items are based on information provided
by person or company making donation. These values are
accepted in good faith by Share A Smile and Share
A Smile in no way assumes responsibility for said
values. These values are for purpose of bidding, not
for resale or appraisal purposes.
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July 1, 2007
The 4th Annual Share
A Smile FoundationTM ®
Polo Match
has been cancelled
Well,
Mother Nature has not been cooperative at all this year! The
polo club contacted us late in the day on June 28 to inform
us they will be cancelling the remainder of the polo season.
This decision was made due to the large amount of water damage
and standing water on the polo grounds. Obviously this means
we will be unable to proceed with our 4th Annual Share
A Smile FoundationTM ®
Polo Match.
As you
know, we have some fabulous auction and raffle items ready
to be bid on. We are planning to hold an "Online Private
Bidding Auction" in which you will have the opportunity
to purchase some of these amazing prizes! Given our luck lately,
we feel Friday, July 13th is an appropriate date to conduct
this exciting event!
Below
is a list of the items you will have the opportunity to bid
on. If you are interested in any of these items, please call
us or send us your email address as soon as possible. Prior
to the 13th we will email those of you who have expressed
an interest in any of these items. We will outline ALL of
the details at that time.
Obviously,
our inability to proceed with our major fundraiser will affect
our ability to assist children in the coming year. This will
not only impact the number of new applicant children we will
be able to sponsor for treatment, but also those we are currently
sponsoring and are in the process of treatment. Please consider
making a donation and/or participating in our auction on Friday
the 13th!
Thank
you all for your support and understanding - we appreciate
each and every one of you.
Sincerely,
Blake & Holly Stock
Founders
Share
A Smile FoundationTM ®
4572 Turnberry Ct.
Plano, TX 75024
972.208.8813/972.567.8191
www.shareasmilefoundation.org
blakestock100@hotmail.com
The Share A Smile Foundation is a 501(c)(3) nonprofit
foundation
ID #02-0649608
May 20, 2007
Want to
share a wonderful story with you all
.in March we received
an email from Jessica & Francesca - two 8th graders who
live in Maryland. The girls explained that they were going
to organize a community service project for one of their classes
and asked if it would be possible for Share A Smile
to be the beneficiary of the funds they raised. They told
us "the reason why is because I find that what you guys
are doing for the kids and the families...is completely wonderful...and
very helpful." Needless to say, we were very moved by
the gesture.
We spoke
with both girls by phone at the beginning of April about the
details of the fundraiser & sent them brochures to display.
They were required to submit a written proposal to the principal
for approval prior to organizing the fundraiser. Just this
week we received an email from Jessica & Francesca announcing
they had raised over $369 to benefit Share A Smile!
In addition to selling 500 homemade cupcakes decorated with
"SMILES", they also baked and sold 360 cookies and
7 dozen Rice Krispies treats! They also baskets of goodies
they raffled off and even persuaded the local Dairy Queen
& Dominoes to donate coupons!
We are
very proud of these two young ladies and their very hard work.
Their initiative is inspiring. In a day when we hear many
negative reports about the young people in our society, these
types of stories should give us all hope about the future!
The funds these girls were able to raise will make a difference
in a child's life. Click
on this link to see pictures of Jessica & Francesca's
very successful fundraising efforts.
Thank
you Jessica & Francesca!
January 8, 2007
As you all know, our goal is to help children whose parents
are employed but do not have insurance coverage for the needed
treatment nor are they eligible for Medicaid/CHIP. Last Spring
we met with Dr. Burns and his staff at the Fogelson Plastic
& Craniofacial Surgery Center for Children in order to
assess the need for financial assistance for other medical
disfigurements in addition to vascular malformations. One
medical problem we found we could easily assist families with
is plagiocephaly (head shape deformity). Because insurance
companies and Medicaid often consider plagiocephaly a cosmetic
issue, treatment is not covered until there are developmental,
vision, hearing or other delays. Just last month we became
aware of Dallas family with infant triplets in need of headbands
to correct plagiocephaly.
When Valarie and Hilario's triplets were born in May of 2006,
they quickly realized they had encountered a problem commonly
associated with multiple births. Cramped quarters in the womb
had caused all three babies to have unique forms of plagiocephaly,
or head shape deformities. After the parents realized their
babies' problems wouldn't disappear on their own, they decided
to seek treatment at The Fogelson Plastic Surgery and Craniofacial
Center for Children. Loa Borchert, a nurse at the Craniofacial
Center for Children evaluated the babies, and then Dr. Hobar,
Craniofacial Surgeon, referred the family to the STAR Cranial
Center of Excellence in Dallas for headband treatment.
Although deformational plagiocephaly can affect developmental
skills, vision, and alignment of jaws and facial features,
the family's insurance company still considered the triplets'
conditions a cosmetic issue and opted not to cover treatment.
In desperate need to pay for treatment --- times three, they
turned to the Share
A Smile FoundationTM ®
. Share
A Smile FoundationTM ®
approved the family's application and paid for 2 of the
helmets; The STAR Cranial Center of Excellence & Orthomerica
donated the third helmet. This is a great collaborative effort
between a large corporation and a local nonprofit foundation
that enabled treatment for a family who can't afford it. If
the young family did not receive funding for the babies' headbands,
it would cost them nearly $10,000 in out of pocket expenses.
"I don't know what we would have done without the Share
A Smile FoundationTM ®
and Orthomerica," said Valarie, the triplet's mother.
"The doctor was saying we had to treat them right away
and we didn't even have enough money to pay for one baby."
Nancy Stinson, Clinical Services Manager at the STAR Cranial
Center of Excellence, will used the Center's state-of-the-art
STARscanner system to take a 1.5 second eye-safe scan of each
baby's head shape. The scans were emailed to Orthomerica,
where their STARbands were custom fabricated. The babies received
their helmets in December, just before the holidays. Carol
Martin (from Compass Bank) & I were fortunate enough to
be able to be a part of this exciting day, meeting Valarie
and Hilario and even getting to hold the babies. The family
was gracious and very thankful for Share
A Smile FoundationTM ®'s
involvement.
A few facts about plagiocephaly:
Infant head shape deformities are a growing concern among
parents today. An estimated 20 percent of babies are born
with deformational plagiocephaly, and many newborns can develop
flat spots during the first few months of life. There are
a variety of different causes for deformational plagiocephaly,
including cramped in utero conditions common in multiple-baby
births, and increased time babies spend on their backs while
sleeping and traveling in carriers. Fortunately, cranial remolding
headband treatment is an effective, non-invasive solution
for babies who start treatment between four and seven months
of age. Headbands are worn for an average of three to four
months. The triplets will need to visit the STAR Cranial Center
of Excellence every few weeks for adjustments.
The triplets are the 4th, 5th and 6th children Share
A Smile FoundationTM ®
has provided helmets for. We are so pleased to be able
to help hard working families like Valarie and Hilario and
we can only do it with your help. Thank you for your continued
support and involvement in the Share
A Smile FoundationTM ®
! For more information about plagiocephaly and it's treatment,
please visit www.starcranialcenter.com
, www.starbandkids.com
or www.orthomerica.com.
Up next: Mark your calendars!
The 4th Annual Share
A Smile FoundationTM ®
Polo Match Fundraising Event will be held on Father's
Day, June 17th, 2007 at the Las Colinas Polo Club. Check back
for more details!
"I WOULD JUST LIKE TO THANK YOU AGAIN FOR DONATING THE
HELMETS TO MY TRIPLETS...HOPEFULLY YOU GET THESE PICS...THANK
YOU AGAIN.
VALARIE AND HILARIO
PICS ARE IN THIS ORDER TABITHA, OLIVIA, AND HILARIO IV "
July 25, 2006
Time for
another much-needed update!
We have
been very busy with fundraisers, applications for kiddos in
need of treatment and the daily maintenance required to keep
a growing non-profit foundation going. We held both our 2nd
Annual Share
A Smile FoundationTM ®
Hole-in-One Putting Contest/HUMMER Giveaway and
our 3rd Annual Share
A Smile FoundationTM ®
Polo Match fundraisers in June so July has been a bit
of a "housekeeping" month - getting everything filed
and put away in it's proper place. Both fundraising events
were VERY successful - you can read all about them, as well
as view some pictures from each, on our "Events"
page.
A couple
of extremely exciting happenings in the fundraising department
in addition to the events mentioned above: a generous person
in Chicago contacted us regarding sponsoring a child in a
friends' name and a large family foundation, the Graziadio
Family Foundation, contacted us requesting information
about Share
A Smile FoundationTM ®in
order to determine whether to make a substantial donation
to our foundation.
In both
instances we were obviously very honored to be considered
for these types of donations and thrilled that we are becoming
known in other parts of the nation (we have previously been
contacted by families in other states and countries regarding
treatment options, but not for donation purposes).
We were
happy to apply the donated funds from Chicago to our newest
patient, Stephanie, who will require extensive surgery
(including a tissue expander) to repair a congenital nevus
on the left side of her face. This is the first time we have
had funds earmarked for a specific child and sponsorship given
as a gift to someone. We hope to see more of both!
Immediately
following our polo match, we received a call from a gentleman
representing the Graziadio Family Foundation (though
at the time we did not realize this & thought he was simply
someone interested in Share
A Smile FoundationTM ®).
He requested detailed information about Share
A Smile FoundationTM ®
including how the money is disbursed, the application process,
the origin of the foundation, etc. Last week, we received
a very touching letter along with a check for a substantial
donation from the Graziadio Family Foundation. The
Graziadio Family Foundation was originated by George
& Reva Graziadio many years ago, and over the years
they have contributed to numerous organizations with an emphasis
in education & medical research & support. George
Graziadio passed away in 2002, however his wife, their
children and grown grandchildren continue the tradition of
giving to causes they deem worthy.
Needless
to say, we have been extremely touched emotionally by the
generosity exhibited in both of these instances and promise
to continue to use these and all future donations with the
utmost discretion: for the treatment of children who, without
our help, would have to continue to live with their malformations.
In other
news, a meeting with the staff of The Fogelson Center
last Spring, concluded with all deciding that there are many
children in need of treatment that do not necessarily have
vascular malformations. Therefore, we have decided to consider
applications for treatment for children not only with vascular
malformations, but also with other malformations/conditions
not covered by insurance and/or Medicaid/CHIPS. This has led
to 4 new applications in the last 2 months. As with other
Share
A Smile FoundationTM ®
sponsored children, these children have hard working parents
and no other options for funding for the needed treatment.
To view pictures of all of the children we are currently sponsoring
for treatment, please visit our "Before & After Pictures"
page.
That's
it for now! As always, we appreciate each and every one of
you who supports Share
A Smile FoundationTM ® -
whether you do it with kind and encouraging words, with your
time or with monetary donations. Share
A Smile FoundationTM ®
would not be successful in impacting children's lives without
your help!
February 2006, "Share A Cup With A Soldier" update.....
We had
a very exciting visitor this week!.....SSG Frank Sarratt
is a local soldier stationed in Baghdad and one of the recipients
of the coffee donated by Plano residents for the "Share
A Cup With A Soldier" project we coordinated with
Starbucks back in the Fall. SSG Sarratt was
home on leave for 2 weeks and wanted to personally thank some
of the children who wrote thank you letters to the troops,
so he contacted Vi at the Starbucks store as
well as staff at the local elementary school responsible for
many of the notes. Before he left Baghdad, SSG Sarratt
put together a slide show, accompanied by music, of some of
the men and women he works with drinking the coffee and reading
the notes. He came to the school this week to present the
show, answer questions and let the kiddos know how much of
an impact their notes had on him and his fellow soldiers.
The presentation was very touching and the students were able
to see first hand that they made a difference in the soldiers
lives. We all enjoyed meeting SSG Sarratt and his wife,
Dominica, and appreciate the time he took out of his
precious two week leave to personally thank those involved
with the project. SSG Sarratt has 6 more months to
serve before he returns home.....we wish him and his troops
the best and will keep them in our prayers each day.
If you
would like to see pictures of his visit to the school, check
out the link on our "Events
and Media" page!
Linda Stewart Ball from the Dallas Morning News
came out to cover the visit and plans to run the story with
pictures in the weekend edition of the paper, so if you live
in the DFW area look for the article!
January 7, 2006
Wow -
time flies - Happy New Year!! So much has happened since our
last update, I'm not sure where to begin, but I'll do my best!
One of
the most exciting happenings is that the Share
A Smile FoundationTM ®
is now in the process of putting together an official Marketing
team!!! Our foundation goal is to grow so we can help even
more children in need of our services, and in order to do
this properly, we realized we needed to call in the experts!
Blake & I, along with all of those involved closely with
the Share
A Smile FoundationTM ®,
love the foundation and are very passionate about our mission,
however we do not have the time or expertise to market the
foundation effectively. In October, the Share
A Smile FoundationTM ®
joined the Volunteer Center of North Texas in hopes of finding
the assistance we so desperately need. The Volunteer Center
placed ads for us in the local newspapers and almost immediately
we began to receive responses. We are putting together a wonderful
small group of volunteers willing to dedicate their time and
expertise to help the Share
A Smile FoundationTM ®
grow to it's potential. Each of the volunteers who will be
working with the foundation has a unique set of experiences
and ideas, all of which I am certain will benefit the foundation
tremendously.
In other
news
.Belinda Ruggeri is working on a fundraising
event to be held at the of January at the Vineyards New and
Antique Mall here in Plano, with the Share
A Smile FoundationTM ®
as the beneficiary of the funds raised. Please visit the "Events"
page on the website for more specific information. We are
excited that Share
A Smile FoundationTM ®
has been chosen as the mall's "charity of choice"
for all fundraising activities held at their facility! The
events page also has pictures from our most recent fundraising
event in which we partnered with local Starbuck's stores to
collect coffee and "thank you" letters for soldiers
overseas. Check it out!
The Share
A Smile FoundationTM ®
is also a finalist for the opportunity to partner with renowned
advertising agency Leo Burnett. As the most awarded agency
at the Effie awards for 4 straight years, Leo Burnett USA
is the "Most Effective Agency in America". They
have helped build many of the world's most valuable brands,
including McDonald's, Disney, Proctor & Gamble, Altoids,
Kellogg, Nintendo and the U.S. Army. Leo Burnett is seeking
a nonprofit partner as a prospective client partner they can
grow "into a powerful and recognized brand". It
is a nationwide contest so there are many applications - keep
your fingers crossed for us!
Most importantly,
several of our patients have been in for treatments these
past few months. Some have had as many as 3 treatments or
surgeries. We are currently treating 6 patients - with 2 having
completed their treatments. Let's keep up the momentum! Please
help us spread the word that we have funds to begin treatment
on several more children in need!
Thank
you for your interest in the Share
A Smile FoundationTM ®!
Holly
& Blake Stock
March 8, 2005
Time for a much needed update on our kiddos!
Jacqueline - our very first patient - continues to progress
well with her treatments. She is scheduled for her 4th procedure
this month and there has been marked improvement in the appearance
of her port-wine stain. Jacqueline, who will be 16 in June,
continues to do well in school - her favorite classes are
Art & Computer.
A little background on Jacqueline: while receiving her first
treatment at the clinic last year, her blood pressure was
found to be dangerously high. Immediately following the procedure,
Jacqueline was admitted to Children's Medical Center, where
she remained for 4 days before doctors there were able to
lower her blood pressure & figure out what was causing
it to be so high. They discovered that her blood pressure
had been high for so long that it was causing Jacqueline's
kidneys to fail - she was diagnosed with chronic renal insufficiency
- and one of her kidneys had to be removed. Jacqueline currently
takes 2 medications to lower her blood pressure as it is still
very high and her doctors are trying to prevent any further
damage to her remaining kidney. She sees her doctor regularly
and her health is stable at this time.
We are all grateful that Jacqueline's condition was recognized
when it was. Had she not been in for treatment of her port-wine
stain, her health may have deteriorated to the point where
both of her kidneys would have to be removed and she would
have to rely on dialysis....or worse. We'll be sure to keep
you updated on Jacqueline's health.
As for our other kiddos.....Mary-Allison required only the
one treatment and, Austin, along with Jacqueline, is scheduled
for treatment this month. We had a new patient, Lesly, who
is a year & a half old, in for treatment in February,
and we have one new patient scheduled this month: Delanie,
who will be 4 in May. We also have applications pending for
2 more kiddos in need of treatment! As with Jacqueline, Austin
& Mary-Allison, all have parents who are working hard
but do not have insurance or Medicaid/CHIP coverage for their
child's needed treatment.
We have been very busy planning our 2nd Annual Polo Match.
It will be held on Mother's Day, May 8th, at the Las Colinas
Polo Club. If you live in the Dallas/Ft. Worth area, we would
love for you to join us! Check out the "Events"
section of this site for more information, or feel free to
give us a call.
One last, very important note: Dr. Jay Burns partner at the
Fogelson Plastic & Craniofacial Clinic, Dr. John Burns
(no relation) has generously volunteered to provide treatment
for some of our kiddos! As with Dr. Jay, he will provide his
services free of charge. We are eternally grateful to both
of these caring & extremely generous doctors! Without
them, the Share
A Smile FoundationTM ®
would not exist and the children you read about above would
not have the options they have for treatment.
Thanks for taking the time to check out our website and read
a little about us!
Holly & Blake
July
28, 2004
We have a couple of things to update you all on. Firstly,
our 14 year-old patient, Jacqueline, has undergone her 2nd
treatment for the port-wine stain that covers part of her
face. We are happy to report that her treatment is going well
and she continues to have a wonderful, positive attitude!
Secondly, we have been able to begin treatment on two other
patients: a two year-old boy named Austin and a 17 year-old
girl named Mary Allison. Both have port-wine stains that will
require several treatments, but initial results are favorable.
As with Jacqueline, they have parents who work hard but do
not have insurance to cover their medical treatments, nor
do they qualify for CHIPS.
We'll continue to keep you posted on Jacqueline, Austin and
Mary Allison's progress. Again, we want to thank all of you
who have contributed to the Share
A Smile FoundationTM ®. Without
your generosity, Jacqueline, Austin and Mary Allison would
not have the opportunity to have their malformations treated.
You are making a difference in a childs life!
Blake & Holly
August 25, 2003
To Combined Group staff and contributors:
I wanted to bring you up to speed on current events of the
SASF.
We've had much behind the scenes activity, which was caused
primarily by a newly elected director of Children's Medical
Center. As you may recall Children's had agreed to provide
their facilities for SASF
at cost. The newly elected director insisted upon contracting
our agreement. This has now been finalized.
We are happy to inform you that we can actually 'share a smile'
with one of the candidate patients Dr. Burns talked about
last December. Her name is Jacqueline. She is a 14-year-old
straight-A student who has a port wine stain on the entire
right side of her face. After her initial consultation with
Dr. Burns in November, her family stayed behind until all
other patients had left, to thank him once again for seeing
their daughter. The father is a painter and earns too much
money to qualify for CHIPS or Medicaid, but not enough money
to afford insurance for his family.
This past week Dr. Burn's office telephoned Jacqueline's mother
and informed her that treatment of her daughter's birthmark
may be scheduled. She was extremely thankful that such a blessing
was bestowed upon her. Jacqueline's first surgery (as it may
require more than one) has been posted for December 10th.
As Dr. Burn's office identifies other qualified candidates
they also will be scheduled for treatment. I will keep you
informed as things progress. Thank you once again for all
of the hard work you have put into this. It has taken a long
time to get this far, but the rewards are just beginning.
Through your hard work, determination, and contributions we
are actually able to make a real difference in this child's
(and others) life.
God bless,
Blake.
August 4, 2003
I am happy to inform you that we were actually able to 'share
a smile' today with one of our patients. Jacqueline is a 14-year-old
straight-A student who has a port wine stain to her right
temple. After her initial consultation with Dr. Burns in November,
her family stayed behind until all the other patients had
left, to thank him once again for seeing their daughter. The
father is a painter and earns too much money to qualify for
CHIPS or Medicaid, but not enough money to afford insurance
for his family.
Through your hard work, determination, and contributions,
we were able to telephone Jacqueline's mother today and inform
her that we can now treat her daughter's birthmark. She was
extremely thankful that such a blessing was bestowed upon
her.
Jacqueline's first surgery has been posted for December 10th
but hopefully we can operate sooner if Dr. Burns schedule
opens up. I will keep you informed as things progress. Thank
you once again for all of the hard work you have put into
this. It has taken a long time to get this far, but the rewards
are just beginning.
Julie Cadena, BS, RN
Childrens Medical Center of Dallas
Plastic Surgery & Vascular Anomalies
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